IN HONOR OF ANNALEIGH GRILO

FUNDRAISER FOR
OSTEOSARCOMA RESEARCH

 

Please join us for a beautiful and casual evening at the beach…enjoying one of Naples’ renowned Gulf sunsets, live music and delicious food and wine.

Throughout the evening, discover ways that you can make a difference for children and families whose lives are impacted by this devastating disease.

APRIL 9, 2022
6:30 - 9:30 PM
SEAGATE BEACH CLUB


A Timeline for the Star-filled evening:

  • 6:30pm | Arrival, and enjoy sumptuous hors d’œuvres, drinks, live music and a magical sunset

  • 7:48pm | Sunset

  • 7:55pm | A short presentation/video

  • Until 9:30pm | Enjoy live music, drinks and wonderful company


 
 

Our Why

When Annaleigh, our 18-year-old daughter passed after her 2-year battle with Osteosarcoma, we discovered a note on her phone where she requested that we donate all of her personal money to benefit others with this disease. She did not want anyone else to suffer the way she did. 

Our mission is to continue to honor Annaleigh’s generosity and compassion… and make it better for all children who are diagnosed with this deadly disease. 

Less than 30% of the children diagnosed with Metastatic Osteosarcoma survive, and the ones that do, often suffer from severe side effects from the antiquated, 40-year-old toxic treatments. Less than 4% of national health funding goes to ALL childhood cancers, and because Osteosarcoma is so rare, it gets just a tiny portion of that 4%. The only way to end the trauma and suffering inflicted by Osteosarcoma is to fund research to develop more effective and less toxic forms of treatment.

— The Grilo Family

What is Osteosarcoma?

Osteosarcoma (OS) is an aggressive, malignant cancer that starts in the bones, most commonly around the knee or the upper arm close to the shoulder. With 800-1,000 cases diagnosed each year in the United States, OS is the most prevalent bone cancer affecting children and adolescents/young adults. OS is the most biologically ancient disease, dating back to the dinosaurs. It is also mentioned in historical medical documents. In the 18th century, an English doctor’s personal medical notes were discovered, where he describes a patient with OS in their leg. He described the tumor in sufficient detail to know that it was OS, and his prescribed treatment included part of today’s Standard of Care for OS: amputation of the leg. 

Around 1980, the chemotherapy combination of Cisplatin, Doxorubicin and Methotrexate was added to the treatment of OS in addition to tumor removal. Sadly, over 40 years later, this toxic, semi-effective treatment protocol is still the Standard of Care for a child’s primary diagnosis, and once the child has relapsed, treatments options are poor.

ALL DONATIONS WILL BENEFIT: